Archive for April, 2010

TALKING TO CHILDREN ABOUT YOUR ILLNESS

Friday, April 30th, 2010

Talking to your Child About Your Illness

A parent’s cancer diagnosis can be stressful for a child. And while a parent must focus on their own care and treatment, they should also be aware of and address their child’s physical and emotional needs. Below are a few suggestions that we hope will help you and your family as you face this challenge.

Maintain open and honest communication. Do not try to hide the situation or protect your child from the truth. Chances are your child will know there is something wrong. Without the facts, they may fill in the gaps using their own imagination, which may be more stressful than knowing the truth itself.

Provide information in an age-appropriate manner based on your child’s developmental level. A response that is appropriate for a 6 year old may not be appropriate for a 12 year old. Your general practitioner, hospital ,The Cancer Society , school social worker or your child’s teachers may be able to help you.

Make sure the communication is  two way. Be attentive to direct questions from your child, as well as to questions or concerns that they may not have words for, but for which they need answers and reassurance. Remember too that children speak through their behavior as much as through words. This is particularly true of younger children.

Make your child’s environment safe and secure. Offer plenty of support and reassurance. Send the message “we can deal with this.” Let your child know that their needs will be met, despite changes that may be necessary.

If your cancer has resulted in behavioral or cognitive changes, address those changes with your child. A specialist familiar with your medical status can fill in the details to help explain behavioral or other changes that may impact your child.

Maintain daily routines. Keep your child’s life as normal as possible.If there are activities you can no longer do with your child, try to find friends, family, or neighbors who can fill in for you. For younger children, try to keep up bedtime rituals and other special times you have with them. Be careful not to overburden an older child with responsibilities they may not be able to handle.

Please call us on 0800CANCER(226 237) for further information, or resources.We have an extensive libray of children’s books on understaning cancer.Please come and see us or contact us if you would like to source any of the books.

Naena Chhima

Cancer Information Nurse.

Taste Changes with Cancer Treatments

Wednesday, April 7th, 2010

      Taste changes with chemotherapy and radiation treatment

      As many of you will know, several cancer treatments (some chemotherapy drugs or radiation to your mouth, nose or throat) can make your food taste strange. Many people find they have a metallic taste and food may taste bitter or salty. Some people find their food all tastes the same.

      Usually your sense of taste begins to come back to normal within a few weeks of finishing chemotherapy. Radiation treatment can cause a loss of taste for longer. The taste buds need time to recover from radiation damage. This usually improves slowly although it can take many months or longer for your sense of taste to return. If you have had any treatment that affects your sense of smell, this will also affect your sense of taste.

      Tips for coping with taste changes

      • If all your food tastes the same, try foods that have strong flavours such as salamis, olives, anchovies, smoked foods, strong cheeses, curries.
      • Try adding garlic, lemon juice, herbs and spices to food. However it’s best to avoid spicy foods if you have a sore mouth, mouth ulcers or thrush.
      • Make a marinade with a couple of tablespoons of olive oil, and some herbs or spices - add some lemon juice or soy sauce if you like. Marinate food overnight if you can.
      • A dry mixture of spices and herbs can be rubbed onto uncooked meat or fish to add flavour.
      • Gravies and sauces can help to add flavour to your meals. This will also moisten your food. People often find their mouth feels very dry when having treatment.
      • Sugar-free sweets or chewing gum may help reduce a bad taste in your mouth.
      • Avoid foods that taste strange to you, but try them again every few weeks as your taste may have improved
      • You may find you associate certain foods or drinks with treatment. You may prefer to avoid your favourite foods until you’ve finished your course of treatment so you don’t go off them for good.
      • Many people say they can’t stand the smell of food preparation or cooking. Grilling rather than frying food may help. Try cooking on an outdoor BBQ. Cold or room-temperature foods also have less of an aroma.
      • Family or friends may offer to cook food which you can freeze in portion sizes to defrost and heat in your microwave.
      • Try using plastic utensils and glass cookware to lessen a metallic taste.
      • Good mouth care is always important when you are having cancer treatment – follow advice of your cancer doctor and nurses and see the Information sheet ‘Coping with sore mouth, dry mouth and mouth infections’ at www.cancernz.org.nz
      •  For more ideas talk to your cancer nurse or dietitian. The Cancer Society booklets Eating Well and Got Water? – a guide for people with a dry mouth also have useful information.

       

    Julie Holt

    Cancer Information Nurse