JulieH

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  • in reply to: Help struggling with what to do #1501
    JulieH
    JulieH
    Keymaster

    Hi and welcome to Cancer Chat NZ. I’m sorry to read of your dilemma – this must be a tough time for you. Does your Dad have other support close by? Sometimes it can help to find out more about the type of treatments he may be having and support services in place for him – perhaps with his permission you could go to a doctor’s appointment with him or arrange to contact his doctor to get an idea of what may be ahead for your Dad? Cancer Society offices around NZ have support staff you can talk things over with. Sometimes in situations like this counselling can be helpful to assist with decision-making, and learning coping strategies.
    You are really welcome to call the Cancer information nurses 0800 CANCER (226 237) or email us at info@cancersoc.org.nz
    Best wishes,
    Julie, Cancer Information Nurse

    in reply to: Visiting my Nana #1499
    JulieH
    JulieH
    Keymaster

    Hi Jekka,
    I’m sorry to hear of your Nana’s cancer diagnosis – sounds like a tough time for your family.I imagine your Nana and Grandad are looking forward to your visit – you will be a welcome distraction from chemo and hospital visits. The best thing when you’re there is to take your cues from them -spend time with them, maybe reading to your Nana, or going for a short walk with her if she would like that. You may find this list of suggestions helpful: https://www.cancer.org/treatment/understanding-your-diagnosis/talking-about-cancer/listen-with-your-heart/talking-tips.html
    Maybe they need practical help eg some meal or snack preparation (smoothies, soup etc), shopping to stock up the pantry, lawn mowing??
    I hope your visit goes well – you are also welcome to call us (cancer information nurses on 0800 CANCER(226 237) if you need.
    Best wishes,
    Julie, cancer information nurse

    in reply to: Feeling very alone in my cancer struggle #1325
    JulieH
    JulieH
    Keymaster

    Thank you for your honest and heartfelt post. Sometimes it is difficult for family watching someone they love going through tough times like this. They may not want to impose or may not know what to do. At times like this being really clear about what you need can be very helpful.
    It can be really difficult to ask for help but reading other people’s minds or expecting them to read our mind often leads to confusion or resentment as we often get it wrong. In these situations clarity of your expectations and needs, and clarity from your family of what they can or can’t provide helps everyone know what is going on.

    Viv

    in reply to: Mothering an adult cancer ‘patient’ #1233
    JulieH
    JulieH
    Keymaster

    Hi motheroffour,
    Thank you very much for posting on CancerChatNZ. I’m so sorry to hear of your daughter’s situation – it sounds very tough for all of you.I can only imagine how hard it’s been for her to give up a lot of her independence, and for you and your husband it must be hard to be in the caring role and seeing the way people act so differently towards her when she is in a chair. It is wonderful that you are able to provide such loving and respectful care for her, but yes it’s very normal to yearn for the way things ‘used to be’. You mentioned going to ‘dark places’ – again understandable, but I wonder if it might be useful to seek some counselling to gain some strategies to manage this? We find this to be helpful for other carers we work with. You could call the cancer information nurses on 0800 CANCER to find out about support locally for you.Your daughter may be interested in this too? Another suggestion is for you to check out the CarersNZ website http://carers.net.nz/ – they have great support resources. Please don’t hesitate to post again and we hope you get replies from others as well.
    Very best wishes,
    Julie, Cancer Information Nurse

    in reply to: The love of my life is dying #1188
    JulieH
    JulieH
    Keymaster

    Hi Blessmyange,
    I’m so sorry to hear of Angel’s diagnosis of glioblastoma – it is so hard living with this raw grief and being supportive to Angel as well. I wonder if you would like to call us – the cancer information nurses on 0800CANCER (226 237) – we are happy to talk and have lots of resources we can suggest that may be helpful.
    Take care,
    Julie
    Cancer info nurse

    in reply to: The love of my life is dying #1187
    JulieH
    JulieH
    Keymaster

    Hi Blessmyange,
    I’m so sorry to hear of Angel’s diagnosis of glioblastoma – it is so hard living with this raw grief and being supportive to Angel as well. I wonder if you would like to call us – the cancer information nurses on 0800CANCER (226 237) – we are happy to talk and have lots of resources we can suggest that may be helpful.
    Take care,
    Julie
    Cancer info nurse

    in reply to: Ungreatful husband hires pro #1183
    JulieH
    JulieH
    Keymaster

    Hi Bubbles4900, Thanks for your post.I’m sorry you’re having such a tough time. It is a very difficult situation when the people who we trust the most let us down in such a significant way. Having friends and family to support you at this time is really important, it may be really helpful to find someone to talk this through with.
    Best wishes,
    Viv

    in reply to: Cancer and life #1149
    JulieH
    JulieH
    Keymaster

    Hi Debbie, Than you for your message and welcome to CancerChatNZ. I’m sorry you’re having such a tough time. You’ve had a lot to deal with in a short period of time and it sounds quite overwhelming.Even though you didn’t need further treatment after surgery just the diagnosis of cancer itself can have a huge impact on your life. I wonder if you’ve found any support groups – sometimes meeting others going through a similar experience can be helpful. I hope you may get some replies from others here and you are also welcome to call us – the nurses on the Cancer Helpline 0800 CANCER (226 237).
    Best wishes,
    Julie

    in reply to: Visiting someone having chemo #1119
    JulieH
    JulieH
    Keymaster

    Hi and welcome to CancerChatNZ. Thanks for your message.
    I’m very sorry to hear about your mother-in-law’s diagnosis of acute myeloid leukaemia. Yes it must be tough for them with no family in the UK. It can be really tricky to know just when to visit as you say she will be immunocompromised from her chemo.
    General advice is to ensure that you are well when you visit – as you are flying you may want to wait a few days after arriving to recover from the trip and know that you are in good health before you visit.
    Yes she will be in hospital if she has a stem cell transplant so it may be easier to visit before this takes place.
    Visits especially from close family can be a real boost to both patient and carer but again, general advice is that it’s good to check with them first that they are happy to have visitors. It may be that she is very tired from treatment – fatigue is a common side effect, so keeping visits short can be a good idea.
    Carers often tell us how tired they are with the emotional worry plus the physical caring they are doing for the patient. Her husband may appreciate having a break to take some time out while you visit, spending some time with a friend or getting some things done that he’s been too busy to do.
    So overall, taking the lead from them on when, and for long they are happy to have visits may be a good strategy and possibly it’s best to go before the stem cell transplant (if this does go ahead). Just note too that she may be immunocompromised for several weeks after chemo finishes, if you go then.
    I hope this helps and best wishes for your visit.
    Julie – cancer information nurse.

    in reply to: Visiting someone having chemo #1118
    JulieH
    JulieH
    Keymaster

    Hi and welcome to CancerChatNZ. Thanks for your message.
    I’m very sorry to hear about your mother-in-law’s diagnosis of acute myeloid leukaemia. Yes it must be tough for them with no family in the UK. It can be really tricky to know just when to visit as you say she will be immunocompromised from her chemo.
    General advice is to ensure that you are well when you visit – as you are flying you may want to wait a few days after arriving to recover from the trip and know that you are in good health before you visit.
    Yes she will be in hospital if she has a stem cell transplant so it may be easier to visit before this takes place.
    Visits especially from close family can be a real boost to both patient and carer but again, general advice is that it’s good to check with them first that they are happy to have visitors. It may be that she is very tired from treatment – fatigue is a common side effect, so keeping visits short can be a good idea.
    Carers often tell us how tired they are with the emotional worry plus the physical caring they are doing for the patient. Her husband may appreciate having a break to take some time out while you visit, spending some time with a friend or getting some things done that he’s been too busy to do.
    So overall, taking the lead from them on when, and for long they are happy to have visits may be a good strategy and possibly it’s best to go before the stem cell transplant (if this does go ahead). Just note too that she may be immunocompromised for several weeks after chemo finishes, if you go then.
    I hope this helps and best wishes for your visit.
    Julie – cancer information nurse.

    in reply to: Post chemo dry throat, sinus, mouth #1098
    JulieH
    JulieH
    Keymaster

    Hi Punkter,
    Welcome to CancerChatNZ
    sorry you are having such a rough time with dry mouth and sinus problems. Dry mouth can be a result of the aftermath of cancer treatments usually worse with radiation to head and neck area affecting salivary glands, but can also be due to chemo – it’s less usual though to get this 6 months after treatment as it tends to improve after treatment finishes- however you may find this info on ‘living with dry mouth’ is helpful -https://wellington.cancernz.org.nz/en/cancer-information/treatment/living-with-dry-mouth/ If you’d like a copy of the booklet sent to you please call us on 0800 CANCER (226 237).
    Best wishes,

    Julie, Cancer Information Nurse and forum moderator

    in reply to: Papillary Serous Carcinoma 1VB #1077
    JulieH
    JulieH
    Keymaster

    Hi and welcome to CancerChatNZ. It sounds like you have a great approach to your treatment coming up. There is good evidence from research that keeping active can help you cope better with treatments. We hope you get some replies here from others going through chemo. If you haven’t already done so, you could contact the support team at Waikato Cancer Society too for support during treatment.
    Best wishes
    Julie

    in reply to: Diffuse b cell lymphoma #822
    JulieH
    JulieH
    Keymaster

    Hi family6,
    Thanks very much for posting and welcome to Cancer Chat NZ. I’m sorry to hear of your husband’s diagnosis of lymphoma – it can certainly be a huge shock, affecting all the family. Diffuse B cell lymphoma is one of the most common types of lymphoma and is often treated with a combination of chemotherapy drugs. The NZ organisation Leukaemia and Blood Cancer has a booklet online about lymphoma – https://www.leukaemia.org.nz/content/uploads/2015/10/NHL-Non-Hodgkin-Lymphoma-Aug121.pdf. It can be helpful to talk to others who have had a similar diagnosis so hopefully you will get replies here or you could try the Cancer Connect service ph 0800 CANCER (226 237) a one-to-one telephone support service or your local Cancer Society may have support groups or counselling services they can put you in touch with. There is online information on supporting someone with cancer which may be useful too -https://wellington.cancernz.org.nz/mi/cancer-information/living-with-cancer/supporting-someone-with-cancer/

    Best wishes,
    Julie, Information Nurse

    • This reply was modified 2 years, 11 months ago by JulieH JulieH.
    in reply to: Risk factors #573
    JulieH
    JulieH
    Keymaster

    Hi Buxton,
    Good to hear from you – thanks very much for posting on CancerChatNZ – we’ve been thinking about how to best answer your question.
    From our reading, the factor which is the strongest guide to how well people do may do after colon cancer is the stage of the cancer i.e. whether the cancer is in the inner lining of the colon only or has spread through the colon wall, or has spread to lymph nodes or other places in the body.
    Other factors which can be important include bowel obstruction and perforation. However it is really important to talk to your doctors about exactly what these factors might mean in your case.
    Overall one of the hardest things about cancer is the ongoing uncertainty, and worry about recurrence – this is very common.
    So sorry we can’t answer your question but we suggest the best thing is for you to discuss your questions with your GP or your surgeon at your next check-up. Thanks again for posting.

    Julie, Anna and Naena, information nurses.

    in reply to: How to get info on my Dad's bladder cancer #525
    JulieH
    JulieH
    Keymaster

    Hi Venice,
    welcome to CancerChatNZ. I’m sorry to hear of your Dad’s cancer – this must be a tough time for you.
    If your Dad gives permission for you to get information on on his cancer you could make an appointment with his GP as they will have received information from the hospital and can explain the situation to you.It can be heard to see the specialist if he’s in the public system – an alternative is to ask at the hospital for the cancer nurse coordinator who you could make an appointment with. They work with people newly diagnosed with cancer and are available in most NZ hospitals. Again you would need his permission to discuss his cancer with them.I hope this helps – let us know how you get on. You can call us on the Cancer Information Helpline ph 0800 CANCER(226237)or email info@cancersoc.org.nz if you wish.
    Best wishes,
    Julie, Cancer Information Nurse

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